Lots of Socks for World Down Syndrome Day
Do you sometimes wear non-matching socks? When you can’t find ones to match or just because you want to? Well on the 21st March you have the perfect excuse to and Agi is going to tell you why.
Agi has been making videos about her life with her little sister, who just happens to have Down Syndrome, for many years. We asked her to tell us more about this condition, and about life with Magdalena and to share some of her videos with us.
Firstly though who am I?
I’m called Agnieszka (Agi for short) and I am home educated with my little sister Magdalena, who is 7 years old. I have a website which I blog on about our life together and anything else I am interested in. I want to be a filmmaker when I’m older, and you can view lots of films that I’ve made on my website, and Magdalena wants to be an artist. She is one of my best friends. We have loads of fun together, and I don’t treat her any differently or treat her ‘specially’, even though she happens to have Down’s syndrome. Which is where the lots of socks come in…but first, let me explain.
I would never have known this unless my little sister, Magdalena was born with an extra 21st chromosome.
Have you worked out yet why World Down Syndrome day is on the 21st of March?
It’s because people with Down syndrome have three chromosomes on chromosome number 21, instead of the usual two. This is also known as Trisomy 21.
Why is it Called Down’s Syndrome?
So why call it Down’s syndrome? No, it’s not because people with Down’s syndrome are ‘down’ or grumpy, it’s actually because Dr John Langdon Down discovered the condition, and it was named after him.
Lot’s of people my age don’t know what Down’s syndrome is, (actually lots of adults don’t either) and that can make them scared of what they don’t know about, so they ignore Magdalena or talk ABOUT her instead of TO her or say something unkind thinking she won’t understand or be hurt by it. So before I get onto the socks, I want to tell you a bit about what Down’s Syndrome is and what it isn’t!
The Adventures of Cha Cha the Dragon – Part 2
Following on from Iona’s wonderful story of Cha Cha the Dragon, here is Part 2
Once upon a time, in deepest China, there lived a man named Li-Wang. Li- Wang was getting on in years. His wife and son had both died in childbirth, and he had only his beautiful daughter to comfort him and to keep him company. It was widely said that the daughter of Li-Wang could be no mortal being, but was an angel, sent straight from the Gods as a token of their grace and kindness. However, Li-Wang, poor man rarely ever got to see his beautiful daughter, for Li-Wang was a builder, and his latest line of employment was on The Great Wall of China Teapots.
What is Geocaching?
What is Geocaching? It’s like a real-life treasure hunt and is a great way to make a walk in the woods just a bit more interesting!
Julianne Robertson explains what it is and how to do it.
What is it?
Players use a handheld GPS device or a smartphone to look for a set of co-ordinates near to wherever they are and find the geocache (or treasure!) hidden at that location. These are usually a small container of some kind with a logbook and ‘treasure’ inside – this can be anything, like a little toy, some stickers, a badge, a pretty stone – basically anything small enough to fit inside and be worth finding!
Sounds good! How do I get started?
Go to the website www.geocaching.com and register – it’s free to sign up. Then you put in your postcode and you should see a list of all the geocaches near to where you live. Choose one and you’ll get the co-ordinates you need to put into the GPS, as well as a description of the area and clues about how to find the cache.
Are geocaches always hidden in the woods?
No – there are geocaches all over the world and they are usually put in places which are important to the person hiding them. Some are hidden in forest areas, others are in local parks, or city streets – even underwater! There are also different sizes of geocache and a range of difficulty – you should probably start with one that’s easy, at least to begin with!
What do I do when I find one – can I keep the treasure?!
Yes, but you should replace anything you keep with something of equal or greater value. You should also write about your find in the logbook and when you get home log your experience on the website too, so that others know the cache is still active.
Can I hide my own cache for others to find?
Yes, once you’ve found a few caches you’ll know what makes a good geocache and hiding place, and you might want to create your own! There are lots of guidelines on the website about how to do it.
Now you know about geocaching – go and try it! It’s a great activity to do with your family or a group of friends. Once you’ve found one, you’ll want to find more!
Julianne Robertson is a freelance journalist, based in Dundee. Her background is radio news, and she now writes features and reviews, specialising in parenting, faith and religion, events and lifestyle issues.
I Love You Natty – A Siblings Introduction to Down’s Syndrome
My name is Mia and I’m ten years old.
I’m the first person in my family to write a book. It’s called I Love You Natty and is about my younger sister who has Down’s syndrome. Natty is 7 and there isn’t anything particularly ‘special’ about her, but she does have an extra chromosome in every cell of her body, which looks like a jelly bean.
She needs some extra help sometimes, for example I learnt Makaton to talk with my hands with her. She used to have physio therapy and also had surgery on her heart when she was small. But we all need support sometimes don’t we?
Most of all Natty is just my little sister. I love that when she was small she would force herself to open her eyes to look at me because she recognised my voice. I love Natty and my life wouldn’t be the same without her.
I wrote this book with Mum so that other children could understand what Down’s syndrome means. I did lots of drawings and we chose lots of family photographs to go in the book too.
I hope you enjoy it. Natty does.
You can order I Love You Natty on Amazon or via your local bookstore