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Lots of Socks for World Down Syndrome Day

Do you sometimes wear non-matching socks? When you can’t find ones to match or just because you want to?  Well on the 21st March you have the perfect excuse to and Agi is going to tell you why.
Agi has been making videos about her life with her little sister, who just happens to have Down Syndrome, for many years. We asked her to tell us more about this condition, and about life with Magdalena and to share some of her videos with us.

 

Firstly though who am I?

I’m called Agnieszka (Agi for short) and I am home educated with my little sister Magdalena, who is 7 years old. I have a website which I blog on about our life together and anything else I am interested in. I want to be a filmmaker when I’m older, and you can view lots of films that I’ve made on my website, and Magdalena wants to be an artist. She is one of my best friends. We have loads of fun together, and I don’t treat her any differently or treat her ‘specially’, even though she happens to have Down’s syndrome. Which is where the lots of socks come in…but first, let me explain.

I would never have known this unless my little sister, Magdalena was born with an extra 21st chromosome.

Have you worked out yet why World Down Syndrome day is on the 21st of March?

It’s because people with Down syndrome have three chromosomes on chromosome number 21, instead of the usual two. This is also known as Trisomy 21.

Why is it Called Down’s Syndrome?

So why call it Down’s syndrome? No, it’s not because people with Down’s syndrome are ‘down’ or grumpy, it’s actually because Dr John Langdon Down discovered the condition, and it was named after him.

Lot’s of people my age don’t know what Down’s syndrome is, (actually lots of adults don’t either) and that can make them scared of what they don’t know about, so they ignore Magdalena or talk ABOUT her instead of TO her or say something unkind thinking she won’t understand or be hurt by it. So before I get onto the socks, I want to tell you a bit about what Down’s Syndrome is and what it isn’t!

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What’s in a name….?

 

 

Do you ever wonder why people can’t pronounce your name correctly? Or struggle to say a friend’s name right sometimes? Here Avani tells us about her experiences, and how we can make the effort to pronounce things as best we can!

 

Do people always get your name wrong?

My name is Avani and let me start by saying: I get it.

Sometimes I spend ages teaching someone how to say my name properly (Uvni would probably be the best way to write how it’s pronounced) and other times I really can’t be bothered. I wish I had an easier name, or that people would just work harder to get it right!

 

Why do we find some names really difficult to pronounce and others really easy? 

 

Here in England, people have names which come from all over the world. These names might be from places where a different language is spoken, and the different languages may also use different letters or characters to those we use for English.

My family, for example, come from a part of India called Gujarat. The Gujarati language uses a syllabary (a set of sounds) rather than an alphabet, but the syllables don’t always match up with English letter. The ‘v’ in ‘Avani’ (વ in Gujarati script) should actually be pronounced somewhere in between the English ‘v’ and ‘w’ sounds, but there isn’t an English letter that sounds exactly the same and this makes my name harder for people to remember! Also the ‘a’ and ‘u’ sounds in Gujarati are written using variations of the same symbol (અ (u) and આ (a)), which is why my name is spelt with an ‘A’, but pronounced using a ‘U’. Here’s what ‘Avani’ looks like written in Gujarati: અવનો – cool, right?

 

Languages which do use the same letters as those in English, may not pronounce all of them in the same way. This means that names that look similar on paper may be pronounced differently depending on where in the world someone lives. In Spanish, for example, the ‘j’ and ‘x’ letters are more like (but not identical to!) the English ‘h’, and in German, the letter ‘j’ sounds more like the English ‘y’ – can you imagine all the different ways people around the world must pronounce ‘Jesus’? You can listen to a few here!

 

Screenshot 2013-10-20 at 18.09.42

 

 

It’s not only names from other countries that are hard to pronounce though! Have you ever thought about which common English names might be tricky for someone learning the language to get their head around? What about the name ‘Thomas’? We say it with a hard ‘T’ (like the one in ‘tree’, rather than the one in ‘three’) even though it is spelt with a ‘Th’, and we say the name ‘Charlotte’ with a ‘Sh’ sound (like in shop) even though it is spelt with a ‘Ch’ (like in chop). It must be hard to keep up with which names follow the usual pronunciation rules (like Theo or Charles) and which ones don’t!

 

 

What can I do if I think I’m pronouncing someone’s name wrong?

 

It is always worth checking with someone if you think you’re saying their name wrong – even if you’ve known them for ages and are embarrassed about asking, chances are they’ll be really glad to have an opportunity to correct you! However, it’s also important to remember that even if you know that the way someone says their name is different to the traditional way of saying it, you should always say their name like they have asked you to. Many people living in England, for example, prefer to go by a nickname or a more ‘Anglicised’ (English-sounding) version of their name to make things a little easier – so if you know a ‘Jesminder’ who prefers ‘Jess’, or a ‘Paulo’ who prefers ‘Paul’, you should respect their decision!

 Screenshot 2013-10-20 at 18.08.40

 

If you’ve just met someone new and have forgotten how to pronounce their name (or even if you’ve met them a few 

times) – don’t despair, they probably won’t mind if you ask them again! If you are too embarrassed, though, there is a huge variety of pronunciation websites out there which will be able to help you. Click here for a good one!

 

 

Do you have a hard-to-pronounce name? Or have you ever been in an embarrassing situation over getting someone’s name wrong? Do you live in another country – which English names do you really struggle with? I’d love to hear your stories!

 

 

As well as trying to get people to say her name right, Avani Shah is currently working on a book for 8-12 year olds. She also blogs about her childhood and teenage experiences (Away with the Mice) and writes about words, etymology, and spelling for a website called Spellzone.

 

Title Photograph: Daisy 2008

Nom & Malc 2008

RiPO 2012

 

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