Sadness is a storm.
A clap of thunder,
As you howl and wail,
Yet through it all,
You still prevail.
Nothing withstands
The heart of the tempest.
Ominous clouds loom,
Lightning flashes.
Light still gets through.
It gives you a glimpse,
Of hope pure and true
All’s well once more,
With the subsiding of the storm.
.
My view is hazy, but I can work out the blurry shape of a nurse, standing by my bed. My eyelids shut; the light was stinging my eyes.
“Hello?” The voice is soft. I decide to answer.
“Hello,” I answer.
“I’m Josie,” says the nurse, pulling up a chair beside the bed. “What’s your name?”
“Kieran,” I reply, chewing my lip.
“Well, Kieran, you’ve been through a lot,” she says. She feels my forehead. “You had a raging fever you know. How do you feel now?”
My name is Mia and I’m ten years old.
I’m the first person in my family to write a book. It’s called I Love You Natty and is about my younger sister who has Down’s syndrome. Natty is 7 and there isn’t anything particularly ‘special’ about her, but she does have an extra chromosome in every cell of her body, which looks like a jelly bean.
She needs some extra help sometimes, for example I learnt Makaton to talk with my hands with her. She used to have physio therapy and also had surgery on her heart when she was small. But we all need support sometimes don’t we?
Most of all Natty is just my little sister. I love that when she was small she would force herself to open her eyes to look at me because she recognised my voice. I love Natty and my life wouldn’t be the same without her.
I wrote this book with Mum so that other children could understand what Down’s syndrome means. I did lots of drawings and we chose lots of family photographs to go in the book too.
I hope you enjoy it. Natty does.
My hands have no feeling.
My feet up to my lower thigh is numb. My stomach and chest is icy cold. I feel so light-headed I might as well faint. I have propped up my rigid body by a peeling black-painted gate which is pricking my back.
Someone stole my blanket, and now I am as good as a chunk of ice.
